Living with Lupus My first symptoms were at age 19: my face swelled, my lymph nodes in my neck were swollen and my eyes were almost swollen shut. The fatigue felt like I was waist high walking through mud. At the time, I was in college and transitioning to live on my own. My Mom […]
Energy Conservation Sounding complicated and very scientific, Energy Conservation (EC), gets easier with practice. In short EC is just saving your energy. Well-known Christine Miserendine created and published, The Spoon Theory. Using spoons as energy, she takes a spoon away with each life task. Sometimes more than one spoon is needed because a task may
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Flexibility Change is a constant in our World; how flexible we are is the question. Change is scary and leads to unknowns. Lupus and its friends bring changes quickly and furiously. When you least expect it, Lupus comes out of nowhere and you must adjust. Yup you guessed it, I have never liked change, and
Learn, ask questions, get pamphlets for Lupus Foundation of America, (LFA, knowledge is power and emotionally satisfying. Support groups, professional therapy and family/friends are valuable resources. As valuable as these sources are you need to be cautious. Support groups are great for meeting other individuals with Lupus and fostering like minded and bodied individuals. Yes,
Doctor appointments seem to come in waves, either all at once or in the same week or a few weeks off. As a new patient for any doctor their appointment time scheduled is usually longer like 30-45 minutes, on regular visits an appointment may only be 10-15 minutes or less. Find a doctor near you,
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Remember, you deserve a life with fun, travel and new experiences. You may not be able to go on a trip for a month or a week, but you can go on day trips or excursions at home or close to home. I need a few events or trips to keep me going. Trips and
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Problems and Other Tips Always consult your doctor for any over the counter supplement, treatment or modality. I am sharing with you what works for me. There are lots of shady individuals out there that are selling products that do not work or bust after using them once. Be aware of scams and research what
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